Blog move

I’ve recently moved all my content over to my new website and new blog posts for the last few weeks have been published on there.

I’ll be writing posts on a variety of different topics including personal development, product reviews and recommendations and things I’ve learnt and would like to share. Content will reflect my current interests and activities (at the moment I’m doing daily posts from my beauty advent calendar). If you’d like to keep up-to-date please visit my new blog at and if you wish to subscribe there are details at the bottom of the page or you can subscribe via Bloglovin.


Heavenly Free From Foods

Isn’t social media amazing? A few months ago a fellow local coeliac mentioned on Instagram that there was a market stall in our local indoor market which specialised in free from foods. I’ll be honest; I don’t think I’d been into the market since I was a young child and my Nana took me to a greasy spoon cafe there! I’d almost forgotten the market was even there. So during my next trip to Hanley I popped in, and Heavenly Free From Foods is now my first stop of any visit and sometimes has justified a visit specifically to go there! So, what makes this place so amazing?

Heavenly Free From Foods

Heavenly Free From Foods

The variety

When I was first diagnosed with coeliac disease in 2009, many stores didn’t have specific free from foods as it was still an unusual thing to be looking for. My local supermarket at the time had a shelf with some gluten free bread and crackers. Fast forward almost eight years and most supermarkets have half an aisle dedicated to a variety of different free from products and even local convenience stores often have a bay of free from items. Heavenly Free From Foods takes it to a whole new level again though; a store full of free from items! The range is incredibly varied; from flours and baking goods, to pastas and ready meals, frozen foods, cupboard staples and snacks. Product ranges cover a variety of different dietary needs too, including a wide selection of vegetarian and vegan items. So many great brands are sold here; including some you can usually only buy online (Free From Fairy flour is stocked here for example!). We’ve been introduced to loads of new great foods thanks to Heavenly Free From Foods, and are trying more almost every time we go!

As a ‘free from’ store, obviously not everything stocked is gluten free, though most products are clearly labelled and the owner is incredibly knowledgeable about the products he stocks so you can just ask if you’re not sure.

The prices

Any coeliac knows a usual ‘free from’ shop is more expensive than a regular shop and it’s understandable that there is a premium due to the sourcing of ingredients and production processes. The prices at Heavenly Free From Foods reflect this of course, though the prices are comparable to supermarkets despite the fact many of the items are specialist. I know I’d far rather my money go to a local independent store than a supermarket. There are frequently offers on things too; especially items that are close to their best before date (which to be honest I usually don’t pay too much attention too for cupboard items!).

The owner

Saving the best until last! As soon as I stepped into Heavenly Free From Foods I was made to feel so welcome by the owner, Paul. He’s incredibly helpful, and he really knows his stuff when it comes to free from products (we do differ on our views of some products but I accept we all have different tastes!). He’s also just an all round great guy who loves chatting to people who visit the shop, and taking on board their suggestions for new products. I’m pleased to now call him a friend – which considering I only went to the market about 3 months ago is really saying something! Over the summer holidays his daughted is giving him a helping hand too – he was much happier about having a photo taken when she promised to be in it too! 🙂

Where is it?

Hopefully now I’ve introduced you to this great store you want to pay a visit yourself. Heavenly Free From Foods is currently in Hanley Indoor Market but will soon be moving to Merrial St in Newcastle-under-Lyme (which fortunately for me but unfortunately for my bank balance is in walking distance from our home and just a few minutes away from my gym!). If you’re in the area and looking for some interesting free from products, I highly recommend paying a visit. For more information check out the Heavenly Free From Foods Facebook page.

Whilst you’re in the area, do check out some of the other local places we love – my husband Chris recently made a list of some of the local free from offerings we enjoy – see Newcastle-under-Lyme Free From Survival Guide.


Living with a lifelong disease 

I’ve been diagnosed with coeliac disease for almost 7 years now. That’s over 20% of my life (to save the Maths, I’m 32 and was diagnosed when I was 25). Most days I don’t even think about it; it’s just part of who I am. I’m used to having to check everything I eat is gluten free and unlikely to have been contaminated. I’ve always been strict with my gluten free diet; I don’t want to knowingly do myself harm, and the fear of infertility (and various other conditions) is a huge risk I’m not willing to take. I appreciate for some coeliacs they don’t worry as much about the risks and don’t follow the diet as strictly. For me though, although I don’t like having coeliac disease most of the time it doesn’t have a huge impact on my life and as frustrating as it can sometimes be to have to talk about it when eating with someone new, it’s really not a huge hardship. Sure, I have moments where it gets me down (I’d love to try a Krispy Kreme doughnut!) and it can make occasions tricky (Christmas is a particularly challenging time of year), but it’s pretty much under control now. 

Or so I thought. 

You see the thing with a lifelong disease is that you have it for life (yes, I know that’s stating the obvious!). As with most other things in life though, it doesn’t necessarily stay the same. Just when you think you’ve got used to everything (the cool kids might say this is ‘the new normal’), things can suddenly shift. In my case this was caused by me going to donate blood a few weeks ago. I’ve been regularly donating for a few years now, though my iron levels are often borderline and once I wasn’t able to donate as they were slightly too low. This time round however they were shockingly low. To the extent that I’m not going to be able to donate blood for at least 12 months and when I went to the GP following the donor centre’s recommendation the doctor saw me immediately and I had additional tests in both the doctor’s surgery and at the local hospital that same day. It was all a bit of a blur, but the care I received was truly excellent – it really made me appreciate how amazing the NHS is and how we can sometimes take it for granted. 

So what’s going on? Well, I have low iron, and low vitamin D, but my B12 levels are in the normal range and my IgA test (for checking my coeliac disease is under control) came back normal. I’ve been put onto high dose Vitamin D tablets for 8 weeks, and I have an appointment with the doctor tomorrow to discuss if I need to do anything else. I’ve researched multivitamins and am taking some daily ones which are gluten free (I’d stopped taking my previous ones as I could t be sure they were gluten free). There are a few potential conditions which need to be ruled out, but it’s looking like perhaps it’s just a case of me not getting all the nutrients I need from my diet. Which sounds simple to change, though of course with the limitations of coeliac disease it has an additional level of complexity (I can’t have cereals for example which are a common source of iron and vitamins). The consultant at the hospital has passed on some information to my doctor I believe so I should hopefully know more after my appointment tomorrow.

I’m glad it’s been noticed, and is being taken seriously in case it’s something more major. However the reminder that I have a lifelong disease that could cause all sorts of future complications has really sucked. It makes me feel like damaged goods; someone who is weak and fragile and needs looking after (which as a fairly independent person has really not been a welcome thing to deal with!). I know I’ve been very lucky so far – my diagnosis was fairly straightforward and much quicker than many other coeliacs, and as of yet I don’t have any other autoimmune diseases. I’m fully aware I’m at an increased risk of many conditions though, even if I do everything I can to keep my coeliac disease under control.

If I learn anything new about my situation that may be helpful to others, I’ll write another blog post but for now I just wanted to share a bit of what I’ve been going through. Partly I’m writing this for therapeutic purposes to help me process things, but also in case anyone else with a lifelong disease is going through similar frustrations and can take solace from the fact they’re not alone. 

Daura Damm – Gluten free beer

As a coeliac, there are quite a few foods and drinks that you have to avoid. People often comment on how much you must miss bread, pizza, cake, biscuits etc. In actual fact it’s fairly easy now (in the UK at least) to get gluten free alternatives to most of these things. One thing that hasn’t been so easy to find until the last couple of years is gluten free beer. I remember going to a Coeliac UK local meeting when I was newly diagnosed and there was a gentleman there who loved beer and most of his social life revolved around beer festivals and CAMRA (Campaign for Real Ale) visits. This poor man had not just received a diagnosis of a lifelong autoimmune disease, he’d also had his social life completely changed. Of course he can still go along to these events, but he won’t be able to have any beer. Fortunately, things have changed in the last few years and I’ve seen more gluten free beer both in supermarkets and in pubs/bars.

I don’t tend to drink alcohol, and when I do I drink fruity ciders or spirits and mixers, but I have been intrigued about gluten free beer as its been years since I tried beer. A few months ago I was contacted by Daura Damm who kindly sent me some samples of their award winning beer to try.

I have to be honest, I discovered I still don’t like beer, but then I wasn’t a fan before so I’m not too surprised. I did find that this tasted much like I remember regular beer to taste like. I gave some samples to family members and friends who do drink beer, and the reviews were pretty good. Most said it tasted just like other regular bottled beers and that they wouldn’t have known it was gluten free if they hadn’t been told. One person absolutely loved it! One person wasn’t a huge fan but then they’re quite fussy about their beer and prefer real ale to bottled beers. Overall, people seemed to like them, and for those who have to follow a gluten free diet but enjoy the taste of beer they seem perfect.

Since trying these I’ve spotted Daura Damm in more and more places so it seems to be becoming much more widely available. As we’re coming into the Christmas season, these would be great to have if you have gluten free guests who like beer joining you. Although I personally don’t like beer, I know many people who do and it’s great that coeliacs and others following gluten free diet can now have an occasional beer if they wish to.

Daura Damm is available from many supermarkets – you’ll usually find it in the free from section rather than the beer section (though this isn’t always the case!).

Gluten Attack: book review and giveaway

I was recently sent a copy of a newly released book by Professor David Sanders called Gluten Attack: Is gluten waging war on our health? And if so what can we do about it?

I was very intrigued by this book and confess I was a little sceptical. As a diagnosed coeliac, I avoid gluten myself, but I know many others choose to avoid gluten and I’m not always sure if it’s necessary. Following a gluten free diet is difficult at times, so part of me thinks anyone who chooses to avoid it is a little bit crazy, but I also wondered if gluten was really as bad for non-coeliacs as it seems some think it is.

Professor David Sanders has been working in this area for many years, with both coeliacs and those who appear to have gluten sensitivity. The first chapter in the book discusses coeliac disease, but the book then goes on to explore gluten sensitivity (or coeliac ‘lite’) and non coeliac gluten sensitivity. I confess in the past I’ve been very sceptical about these areas, and do find it can muddy the waters a little in terms of what coeliac disease is and what it means to follow a gluten free diet (having reflected on this, I think my view was due to my frustration when I experience the issue in some eating establishments where they say ‘oh but it’s fine for other gluten free customers’). The book made me realise how lucky I am really – to have a confirmed diagnosis is a luxury many don’t have.

The book goes on to explore many related issues such as neurological effects, skin effects, irritable bowel syndrome, and infertility. Here’s an overview of the chapters:

The chapters vary in length; some areas do not yet have many medical studies. Some are areas I’m more interested in than others, but I’m sure other readers will have different interests, so I was pleased to see a broad variety. I found it very useful to have a summary of the medical studies presented, as well as David’s opinion on some of the things that need more investigation. One thing I did struggle a little with the OK was knowing who it is targeted at – some of the medical concepts were explained in great detail whilst others were glossed over. I also found it an unusual mix between formal reporting of medical studies, mixed with personal experiences and an informal conversational style of writing. By the end I decided I quite like this approach actually, but it was very unusual and not what I’m used to reading so I found it a little strange.

One thing I wasn’t keen on was the inclusion of recipes. I’m not sure why they were included as they seemed like a way to bulk out the book. There are many gluten free cookery books and recipes if you’re looking for that, and the recipes were not from the author, so to me they felt out of place. This is particularly the case considering one of the main messages from the book was to not exclude gluten from your diet until you’ve been to your doctor – to then provide gluten free recipes seemed a little odd to me. I guess they’re potentially useful to those of us who have been diagnosed with coeliac disease or have been advised to avoid gluten, but I don’t think anyone would buy this book looking for recipes.

Overall however, I really enjoyed reading the book and definitely learned more about what medical research has found so far, and what is still to be explored. I’d definitely recommend it for coeliacs interested in learning a bit more about the condition, though most of the book focuses on the tricky issue of non-coeliac sensitivity so I suspect it may be of interest in particular to those who are experiencing issues they suspect may be diet-related.

As I’ve finished reading my copy, I’d like to pass it on to someone else who would like to read it. If you’re interested in receiving my copy of the book, please enter the Rafflecopter draw which you can find on the Gluten Free Joeyanne Facebook page.

The draw will close on 31st October. Good luck!

Should coeliacs be entitled to gluten free food on prescription?

There have been an increasing number of news articles on the topic of gluten free food on prescription recently and (understandably) it’s one that coeliacs have a lot to say about. For those who aren’t aware, at present in most parts of the UK diagnosed coeliacs are entitled to get some basic gluten free food on prescription from the NHS. The only treatment for coeliac disease at the moment is to follow a strict gluten free diet so some coeliacs can get some staples such as flour and bread on prescription (despite what some articles say, this wouldn’t usually entitle people to biscuits, cakes or other luxury items). Unless you’re entitled to free prescriptions you have to pay for your prescriptions; most who choose to have gluten free food on prescription use the prepayment certificate option.

As budgets are tightened, local CCGs are having to make difficult decisions about how to save money, and one of the things some of them are looking at is reducing or stopping gluten free food on prescription for those with coeliac disease. My local areas is currently reviewing their policy on providing gluten free prescriptions. The briefing document on gluten free prescribing in Stoke on Trent and North Staffordshire outlines the costs and options available. The options are to continue as present; stop the prescriptions; or provide limited prescriptions.

I used to use the gluten free prescription service. When I was first diagnosed with coeliac disease I was introduced to some brands who are only available on prescription and my GP added a few of these items to a repeat prescription. I decided to get a prepayment certificate so I paid just over £10/month and for that I was entitled to a certain number of units of gluten free staples. I used to order through the electronic repeat prescription scheme so I would submit the repeat prescription online (via a mobile app) and once it had been approved by my doctor I would call the local pharmacy who would order items (and in my case deliver to my door when it was ready – though I don’t think this is common everywhere!). Many of the items on prescription you can only order in bulk and as we only had a small freezer compartment much of this space was dedicated to bread! I used to order probably on average about once every three months and would order bread (either sliced loaves or rolls), crackers, and multipurpose gluten free flour. Once I was more used to the gluten free diet and items became more readily available in supermarkets I decided to stop my prescription as I’m fortunate that my local stores have what I need and I can afford to buy them (gluten free alternatives are often a much higher price).

Although I don’t currently use the NHS gluten free prescription service, I would be very sad to see it stop. It was incredibly helpful for me when I was first diagnosed, and I know it would be beneficial if my circumstances were different (e.g. if I didn’t live near stores that had a good selection of good quality gluten free food, or if I couldn’t afford to buy gluten free versions).

If the prescriptions are stopped, some coeliacs may choose to continue to eat gluten (it can be difficult and expensive to follow a gluten free diet). If coeliacs continue to eat gluten, they are at much higher risk of many other medical conditions such as anaemia, osteoporosis, infertility, and cancers. I don’t have figures, but I believe the potential cost to the NHS if coeliacs don’t stick to a gluten free diet would be much higher than the costs involved in helping them follow a gluten free diet. There are other ways to support coeliacs (e.g. educating coeliacs to help them follow a gluten free diet and working with organisations such as Coeliac UK to improve the situation regarding labelling and availability of gluten free food), so this may be one way to reduce the future strain on NHS, though it is likely to involve a lot of work (and therefore cost).

I would welcome the CCGs considering other options such as voucher schemes which are being trialled in some areas where NHS provide vouchers which can be used in local stores to help towards the cost of gluten free food. This way the market is encouraged to provide gluten free food in stores, and those who *need* to follow a gluten free diet but may struggle financially are supported to enable them to follow the diet.

I attended a local coeliac meeting which was attended by representatives of the CCG as part of the consultation, and I also completed the online survey (both time I encouraged the CCG to look into alternative options). According to the CCG website they received over 300 responses to the survey (which I don’t think is that great to be honest!) and have developed a recommendation for consideration at the next public Governing Board meeting. Based on what has happened in other areas, I imagine the prescriptions will be stopped, though I hope this isn’t the case. I was pleased to have been able to be part of the consultation and look forward to hearing what the outcome will be.

Does your local area provide gluten free food on prescription? Do you use the service? Do you think NHS should provide gluten free prescriptions?

Busy Bee Cake House, Newcastle-under-Lyme

A local blogger let me know about this great new place which has recently opened in Newcastle-under-Lyme and has gluten free cakes!

Busy Bee Cake House sign

Busy Bee Cake House sign

Busy Bee Cake House is a cafe specialising in cakes (surprise surprise!). They also serve a variety of hot and cold drinks (at very reasonable prices!) and sandwiches. They have loads of delicious looking cakes, and even better they have cakes which are suitable for a variety of different dietary requirements, including gluten free, lactose free, dairy free, vegan, paleo, diabetic friendly, and protein cakes.

We visited one afternoon after lunch, and shared two of their gluten free cakes. It was so great to be able to have a choice. We actually arrived just as they had finished a new recipe so we were the first customers to try one of the cakes (currently unnamed!).

Busy Bee Cake House

Busy Bee Cake House – unnamed cake

Busy Bee Cake House

Busy Bee Cake House – unnamed cake and Chestnut Tower

Both cakes were lovely and light (always impressive for gluten free cakes which can often be dense and crumbly). The chestnut tower was really interesting; it tasted like it had liqueur in but we were assured that was the chestnut puree. It was really delicious – the different creams and the light sponge base worked together so well. The unnamed cake (I suggested just calling it a chocolate cream cake!) was made with rice flour but as anyone who has baked with rice flour knows, this doesn’t mean it tastes like rice. It had quite a subtle chocolate flavour and was again very light. There were other gluten free cakes available too; one I’m keen to try is the vegan cheesecake which I believe is free of all main allergens and diabetic friendly too.

It’s a lovely relaxed atmosphere in the cafe; whilst we were in there there were some people eating cake and others who just came in for tea/coffee. The owners are very friendly too – they talked to us about the gluten free items, and came to ask us for feedback on the new cake as well as name suggestions. It’s a lovely light airy space with minimalist decoration (mostly branded with the Busy Bee Cake House logo or featuring photos of their celebration cakes). They can make cakes for occasions and are happy to adapt to your needs – when we were in there someone was discussing plans with them for a couple of birthday cakes. They had a Despicable Me Minion cake and a 3 tier traditional wedding cake on display when we visited and they looked great.

Busy Bee Cake House in Newcastle-under-Lyme

Busy Bee Cake House in Newcastle-under-Lyme

Busy Bee Cake House is at 6 The Midway, Newcastle-under-Lyme and is open from 10am until 6pm every day. I’m sure we’ll visit again and it’s a great place for meeting friends. Highly recommended!